About Us Essays from the Disability Series of the New York Times

About Us  Essays from the Disability Series of the New York Times
Author: Peter Catapano,Rosemarie Garland-Thomson
Release: 2019-09-03
Editor: Liveright Publishing
Pages: 304
ISBN: 9781631495861
Language: en
Available for:

DESCRIPTION BOOK:

Based on the pioneering New York Times series, About Us collects the personal essays and reflections that have transformed the national conversation around disability. Boldly claiming a space in which people with disabilities can be seen and heard as they are—not as others perceive them—About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them. Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond. Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public. Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm. In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children. With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities. Topics Include: Becoming Disabled • Mental Illness is not a Horror Show • Disability and the Right to Choose • Brain Injury and the Civil Right We Don’t Think • The Deaf Body in Public Space • The Everyday Anxiety of the Stutterer • I Use a Wheelchair. And Yes, I’m Your Doctor • A Symbol for “Nobody” That’s Really for Everybody • Flying While Blind • My $1,000 Anxiety Attack • A Girlfriend of My Own • The Three-Legged Dog Who Carried Me • Passing My Disability On to My Children • I Have Diabetes. Am I to Blame? • Learning to Sing Again • A Disabled Life is a Life Worth Living

About Us

About Us
Author: Peter Catapano,Rosemarie Garland-Thomson
Release: 2019-09-03
Editor: National Geographic Books
Pages: 0
ISBN: 9781631495854
Language: en
Available for:

DESCRIPTION BOOK:

Based on the pioneering New York Times series, About Us collects the personal essays and reflections that have transformed the national conversation around disability. Boldly claiming a space in which people with disabilities can be seen and heard as they are—not as others perceive them—About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them. Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond. Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public. Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm. In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children. With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities. Featuring Essays from: John Altmann • Todd Balf • Jennifer Bartlett • Emily Rapp Black • Sheila Black • Sasha Blair-Goldensohn • Cheri A. Blauwet • Molly McCully Brown • Joseph P. Carter • Peter Catapano • Randi Davenport • Luticha Doucette • Anne Finger • Joseph J. Fins • Shane Fistell • Paula M. Fitzgibbons • Kenny Fries • Rosemarie Garland-Thomson • Jenny Giering • Ona Gritz • Elizabeth Guffey • Jane Eaton Hamilton • Ariel Henle • Edward Hoagland • Alex Hubbard • Liz Jackson • Elizabeth Jameson • Cyndi Jones • Anne Kaier • Georgina Kleege • Rachel Kolb • Elliott Kukla • Catherine Kudlick • Emily Ladau • Laurie Clements Lambeth • Alaina Leary • Riva Lehrer • Gila Lyons • Ben Mattlin • Zack McDermott • Catherine Monahon • Jonathan Mooney • Susannah Nevison • Joanna Novak • Valerie Piro • Oliver Sacks • Katie Savin • Melissa Shang • Alice Sheppard • Daniel Simpson • Brad Snyder • Andrew Solomon • Rivers Solomon • Carol R. Steinberg • Jillian Weise • Abby L. Wilkerson • Alice Wong

I Live a Life Like Yours

I Live a Life Like Yours
Author: Jan Grue
Release: 2021-08-17
Editor: FSG Originals
Pages: 272
ISBN: 9780374600792
Language: en
Available for:

DESCRIPTION BOOK:

"A quietly brilliant book that warms slowly in the hands." —Dwight Garner, The New York Times I am not talking about surviving. I am not talking about becoming human, but about how I came to realize that I had always already been human. I am writing about all that I wanted to have, and how I got it. I am writing about what it cost, and how I was able to afford it. Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life—his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father—he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human. Along the way, Grue moves effortlessly between his own story and those of others, incorporating reflections on philosophy, film, art, and the work of writers from Joan Didion to Michael Foucault. He revives the cold, clinical language of his childhood, drawing from a stack of medical records that first forced the boy who thought of himself as “just Jan” to perceive that his body, and therefore his self, was defined by its defects. I Live a Life Like Yours is a love story. It is rich with loss, sorrow, and joy, and with the details of one life: a girlfriend pushing Grue through the airport and forgetting him next to the baggage claim; schoolmates forming a chain behind his wheelchair on the ice one winter day; his parents writing desperate letters in search of proper treatment for their son; his own young son climbing into his lap as he sits in his wheelchair, only to leap down and run away too quickly to catch. It is a story about accepting one’s own body and limitations, and learning to love life as it is while remaining open to hope and discovery.

Disability Visibility

Disability Visibility
Author: Alice Wong
Release: 2020-06-30
Editor: Vintage
Pages: 338
ISBN: 9781984899422
Language: en
Available for:

DESCRIPTION BOOK:

“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

Staring

Staring
Author: Rosemarie Garland-Thomson
Release: 2009-04-17
Editor: Oxford University Press
Pages: 256
ISBN: 9780199886814
Language: en
Available for:

DESCRIPTION BOOK:

Drawing on examples from art, media, fashion, history and memoir, cultural critic Rosemarie Garland-Thomson tackles a basic human interaction which has remained curiously unexplored, the human stare. In the first book of its kind, Garland-Thomson defines staring, explores the factors that motivate it, and considers the targets and the effects of the stare. While borrowing from psychology and biology to help explain why the impulse to stare is so powerful, she also enlarges and complicates these formulations with examples from the realm of imaginative culture. Featuring over forty illustrations, Staring captures the stimulating combination of symbolic, material and emotional factors that make staring so irresistible while endeavoring to shift the usual response to staring, shame, into an engaged self-consideration. Elegant and provocative, this unique study advances new ways of thinking about visuality and the body that will appeal to readers who are interested in the overlap between the humanities and human behaviors.

Critical Disability Theory

Critical Disability Theory
Author: Dianne Pothier,Richard Devlin
Release: 2011-11-01
Editor: UBC Press
Pages: 352
ISBN: 9780774841566
Language: en
Available for:

DESCRIPTION BOOK:

Despite the widespread belief that Canada is a country of liberty, equality, and inclusiveness, many persons with disabilities experience social exclusion and marginalization. In this book, twenty-four scholars from a variety of disciplines contend that achieving equality for the disabled is not fundamentally a question of medicine or health, nor is it an issue of sensitivity or compassion. Rather, it is a question of politics, and of power and powerlessness. This book argues that we need a new understanding of participatory citizenship that encompasses the disabled, new policies to respond to their needs, and a new vision of their entitlements.

Representing Disability in an Ableist World

Representing Disability in an Ableist World
Author: Beth A. Haller
Release: 2010
Editor: Unknown
Pages: 208
ISBN: 0972118934
Language: en
Available for:

DESCRIPTION BOOK:

Includes bibliographical references and index.

Cognitive Disability and Its Challenge to Moral Philosophy

Cognitive Disability and Its Challenge to Moral Philosophy
Author: Eva Feder Kittay,Licia Carlson
Release: 2010-05-18
Editor: John Wiley & Sons
Pages: 440
ISBN: 1444322796
Language: en
Available for:

DESCRIPTION BOOK:

Through a series of essays contributed by clinicians, medicalhistorians, and prominent moral philosophers, CognitiveDisability and Its Challenge to Moral Philosophy addresses theethical, bio-ethical, epistemological, historical, andmeta-philosophical questions raised by cognitive disability Features essays by a prominent clinicians and medicalhistorians of cognitive disability, and prominent contemporaryphilosophers such as Ian Hacking, Martha Nussbaum, and PeterSinger Represents the first collection that brings togetherphilosophical discussions of Alzheimer's disease,intellectual/developmental disabilities, and autism under therubric of cognitive disability Offers insights into categories like Alzheimer's, mentalretardation, and autism, as well as issues such as care,personhood, justice, agency, and responsibility

Writers on Writing

Writers on Writing
Author: Anonim
Release: 2002-05
Editor: Macmillan
Pages: 292
ISBN: 0805070850
Language: en
Available for:

DESCRIPTION BOOK:

A collection of touching, humorous, and practical writings explores literature and the art of writing with contributions from Russell Banks, Saul Bellow, E. L. Doctorow, Richard Ford, Carl Hiaasen, Alice Hoffman, John Updike, and many others. Reprint. 17,500 first printing.

Imaging and Imagining Illness

Imaging and Imagining Illness
Author: Devan Stahl
Release: 2018-01-22
Editor: Wipf and Stock Publishers
Pages: 150
ISBN: 9781532640292
Language: en
Available for:

DESCRIPTION BOOK:

Medical imaging technologies can help diagnose and monitor patients' diseases, but they do not capture the lived experience of illness. In this volume, Devan Stahl shares her story of being diagnosed with multiple sclerosis with the aid of magnetic resonance images (MRIs). Although clinically useful, Stahl did not want these images to be the primary way she or anyone else understood her disease or what it is like to live with MS. With the help of her printmaker sister, Darian Goldin Stahl, they were able to reframe these images into works of art. The result is an altogether different image of the ill body. Now, the Stahls open up their project to four additional scholars to help shed light on the meaning of illness and the impact medical imaging can have on our cultural imagination. Using their insights from the medical humanities, literature, visual culture, philosophy, and theology, the scholars in this volume advance the discourse of the ill body, adding interpretations and insights from their disciplinary fields.

Eugenics Genetics and Disability in Historical and Contemporary Perspective

Eugenics  Genetics  and Disability in Historical and Contemporary Perspective
Author: Gerald O'Brien
Release: 2023
Editor: Oxford University Press
Pages: 153
ISBN: 9780197611234
Language: en
Available for:

DESCRIPTION BOOK:

"Over the course of the past few decades there have been two important developments within American society that have had profound impact on both the disability and social work communities. First, genetic research, as well as policy and practice innovations based on this research, has expanded greatly over the past few decades. This is indicated, for example, by the mapping of the human genome in 2003, an expansion of prenatal genetic testing and counseling options, efforts to tailor drug regimens based on one's genetic make-up, popular genetic ancestry and medical testing services, and potential in-roads to genetic engineering, along with a host of other bio-genetic research innovations. The second important development has been the growth of the disability rights movement, which in many ways parallels the civil rights campaigns of other "minority" groups. Importantly, the coexistence of these two developments poses intriguing challenges for social work that the profession has yet to address in a meaningful way. Moreover, coming to term with these issues is especially important for social work professionals in our crucial role as advocates for marginalized or de-valued populations"--

Sex and Disability

Sex and Disability
Author: Robert McRuer,Anna Mollow
Release: 2012-01-04
Editor: Duke University Press
Pages: 431
ISBN: 9780822351542
Language: en
Available for:

DESCRIPTION BOOK:

This collection brings together scholars and artists in disability studies, sexuality, queer theory, and feminism, to show how much sexuality studies and disability studies have to learn from each other.

Criptiques

Criptiques
Author: Caitlin Wood
Release: 2014-03-15
Editor: Unknown
Pages: 270
ISBN: 0991573404
Language: en
Available for:

DESCRIPTION BOOK:

Criptiques is a groundbreaking collection of essays by disabled authors examining the often overlooked, provocative sides of disability. Exploring themes of gender, sexuality, disability/crip culture, identity, ableism and much more, this important anthology provides much needed space for thought-provoking discourse from a highly diverse group of writers. Criptiques takes a cue from the disability rights slogan "Nothing About Us Without Us," illuminating disability experiences from those with firsthand knowledge. Criptiques is for people invested in crip culture, the ones just discovering it, and those completely unfamiliar with the term.

Pachinko National Book Award Finalist

Pachinko  National Book Award Finalist
Author: Min Jin Lee
Release: 2017-02-07
Editor: Grand Central Publishing
Pages: 496
ISBN: 9781455563913
Language: en
Available for:

DESCRIPTION BOOK:

A New York Times Top Ten Book of the Year and National Book Award finalist, Pachinko is an "extraordinary epic" of four generations of a poor Korean immigrant family as they fight to control their destiny in 20th-century Japan (San Francisco Chronicle). NEW YORK TIMES NOTABLE BOOK OF 2017 * A USA TODAY TOP TEN OF 2017 * JULY PICK FOR THE PBS NEWSHOUR-NEW YORK TIMES BOOK CLUB NOW READ THIS * FINALIST FOR THE 2018DAYTON LITERARY PEACE PRIZE* WINNER OF THE MEDICI BOOK CLUB PRIZE Roxane Gay's Favorite Book of 2017, Washington Post NEW YORK TIMES BESTSELLER * #1 BOSTON GLOBE BESTSELLER * USA TODAY BESTSELLER * WALL STREET JOURNAL BESTSELLER * WASHINGTON POST BESTSELLER "There could only be a few winners, and a lot of losers. And yet we played on, because we had hope that we might be the lucky ones." In the early 1900s, teenaged Sunja, the adored daughter of a crippled fisherman, falls for a wealthy stranger at the seashore near her home in Korea. He promises her the world, but when she discovers she is pregnant--and that her lover is married--she refuses to be bought. Instead, she accepts an offer of marriage from a gentle, sickly minister passing through on his way to Japan. But her decision to abandon her home, and to reject her son's powerful father, sets off a dramatic saga that will echo down through the generations. Richly told and profoundly moving, Pachinko is a story of love, sacrifice, ambition, and loyalty. From bustling street markets to the halls of Japan's finest universities to the pachinko parlors of the criminal underworld, Lee's complex and passionate characters--strong, stubborn women, devoted sisters and sons, fathers shaken by moral crisis--survive and thrive against the indifferent arc of history. *Includes reading group guide*

Beholding Disability in Renaissance England

Beholding Disability in Renaissance England
Author: Allison P. Hobgood
Release: 2021-03-30
Editor: University of Michigan Press
Pages: 283
ISBN: 9780472132362
Language: en
Available for:

DESCRIPTION BOOK:

How disability and ableism took shape in Renaissance England

Public Health for an Aging Society

Public Health for an Aging Society
Author: Thomas R. Prohaska,Lynda A. Anderson,Robert H. Binstock
Release: 2012-03-15
Editor: JHU Press
Pages: 454
ISBN: 9781421404349
Language: en
Available for:

DESCRIPTION BOOK:

Students and practitioners will find Public Health for an Aging Society an invaluable resource both in the workplace and the classroom.

Books of the Century

Books of the Century
Author: Charles McGrath
Release: 2000
Editor: Three Rivers Press (CA)
Pages: 696
ISBN: PSU:000049496932
Language: en
Available for:

DESCRIPTION BOOK:

Presents book reviews and essays on literature originally published in The New York times book review.

Un doing Diabetes Representation Disability Culture

 Un doing Diabetes  Representation  Disability  Culture
Author: Bianca C. Frazer,Heather R. Walker
Release: 2022-01-21
Editor: Springer Nature
Pages: 368
ISBN: 9783030831103
Language: en
Available for:

DESCRIPTION BOOK:

While the 21st century insulin crisis provokes protest and political dialogue, public conception of diabetes remain firmly unchanged. Popular media representations portray diabetes as a condition couched in lifestyle choices. In the groundbreaking volume (Un)doing Diabetes, authors destabilize depictions so powerful, so subtle, and so unquestioned, that readers may find assertions counterintuitive. (Un)doing Diabetes is the first collection of essays to use disability studies to explore representations of diabetes across a wide range of mediums- from Twitter to TV and film, to theater, fiction, fanfiction, fashion and more. This disability studies approach to diabetes locates individual experiences of diabetes within historical and contemporary social conditions. In undoing diabetes, authors deconstruct assumptions the public commonly holds about diabetes, while writers doing diabetes present counter-narratives community members create to represent themselves. This collection will be of interest to scholars, activists, caregivers, and those living with diabetes.

Disability Incarcerated

Disability Incarcerated
Author: L. Ben-Moshe,C. Chapman,A. Carey
Release: 2014-05-29
Editor: Springer
Pages: 297
ISBN: 9781137388476
Language: en
Available for:

DESCRIPTION BOOK:

Disability Incarcerated gathers thirteen contributions from an impressive array of fields. Taken together, these essays assert that a complex understanding of disability is crucial to an understanding of incarceration, and that we must expand what has come to be called 'incarceration.' The chapters in this book examine a host of sites, such as prisons, institutions for people with developmental disabilities, psychiatric hospitals, treatment centers, special education, detention centers, and group homes; explore why various sites should be understood as incarceration; and discuss the causes and effects of these sites historically and currently. This volume includes a preface by Professor Angela Y. Davis and an afterword by Professor Robert McRuer.

The Pretty One

The Pretty One
Author: Keah Brown
Release: 2019-08-06
Editor: Simon and Schuster
Pages: 256
ISBN: 9781982100551
Language: en
Available for:

DESCRIPTION BOOK:

From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays exploring what it means to be black and disabled in a mostly able-bodied white America. Keah Brown loves herself, but that hadn’t always been the case. Born with cerebral palsy, her greatest desire used to be normalcy and refuge from the steady stream of self-hate society strengthened inside her. But after years of introspection and reaching out to others in her community, she has reclaimed herself and changed her perspective. In The Pretty One, Brown gives a contemporary and relatable voice to the disabled—so often portrayed as mute, weak, or isolated. With clear, fresh, and light-hearted prose, these essays explore everything from her relationship with her able-bodied identical twin (called “the pretty one” by friends) to navigating romance; her deep affinity for all things pop culture—and her disappointment with the media’s distorted view of disability; and her declaration of self-love with the viral hashtag #DisabledAndCute. By “smashing stigmas, empowering her community, and celebrating herself” (Teen Vogue), Brown and The Pretty One aims to expand the conversation about disability and inspire self-love for people of all backgrounds.